This is a monthly chat group set for people newly diagnosed with a rare bone marrow failure condition, such as aplastic anaemia, Dyskeratosis Congenita, Fanconi Anaemia and Shwachman Diamond Syndrome. We understand that a diagnosis of aplastic anaemia can be very frightening and we are here to help you.

We have set up this chat group to give you the opportunity to ask questions and share your experiences in a safe and confidential space.  

You are very welcome, you don't need to have attended any previous event or have spoken to us before. Just come along and say hello!

Led by Zoe

This chat will be hosted by our Support and Outreach Co-ordinator, Zoe Smith. 

Zoe was diagnosed with aplastic anaemia herself in November 2020 and received HATG treatment in Leeds in April 2021.  

Zoe worked previously as a Pastoral Manger in a large primary school in Leeds delivering bespoke packages of support to children and families who had social, emotional and mental health needs. Zoe is now keen to work with the charity to support children and families who are affected by aplastic anaemia.  Zoe lives in Leeds with her husband and two teenage sons Harvey and Kyle. 

How we keep this space safe for everyone

We know that sometimes it can be nerve-racking attending a new event, so here's how we manage our groups so you know what to expect when you join us.

This is a confidential space, where the aim is for you to experience and share empathy and understanding with other people in a similar situation.

As the space is confidential, we ask that you do not share what you hear within the group, outside of the group.

Your opinions are your own and we ask that everyone respects that other people's opinions may be different from yours, and that's ok!

We are an evidence-based organisation and support evidence based treatments.

We know that groups are not for everyone, and sometimes you won't know that till you try them out.  If you decide a group is not right for you at this time, then that's ok - you can leave with no questions asked. (Although we may check in on you later to see if you're ok).

The facilitator is responsible for the wellbeing of the whole group, and if a particular subject is causing distress to others the facilitator will kindly move the discussion on.

If anything you hear in the group session distresses you, we invite you to please reach out to your AAT facilitator.

If you're nervous about joining the chat and would like to get in touch with Zoe before the event, you can call our helpline number on +44 (0) 300 102 3202 or email [email protected].

Register for free below to receive the Zoom joining link via email.

Book a place

Ticket Quantity Price

Chat: Newly Diagnosed Chat - Jul 26

Decrease Increase £0.00