Meet Jovita

In this film, Jovita talks about what life is like with PNH, an ultra rare condition related to the bone marrow.

Latest

Treatment to reduce your risk of infections

Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)
Raising for the rare

Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.
Young People's Support Group Taster Session

Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.
London Landmarks Half Marathon 2027

Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Sex and relationships

Living with a rare bone marrow failure condition can have a real impact on your intimate relationships. We asked Caroline Lovett, a psychosexual and relationship therapist, to work with us to create this series of articles and videos, covering some of the issues and feelings you might be experiencing.
Coping with isolation

When you are being treated for aplastic anaemia, you may need to spend some time in isolation. This means that for a while you need to be protected from germs and will need to see and spend less time with people than usual. Many people have told us that spending time in isolation can feel like one of the biggest challenges when dealing with aplastic anaemia. However, there are things you can do to make it feel better.
Conditions connected with aplastic anaemia

Conditions that may cause aplastic anaemia, or which aplastic anaemia patients are more likely to develop.
Rare Patient Passport

To apply for your own Rare Patient Passport
The power of meeting someone face-to-face

Barbara had been in hospital in isolation, but on the first day she was allowed to leave the room - she walked out of the building, across the road to the Maggie's centre and found Zoe.
Birds, bugs and... a turtle?? Photographs from our London Wildlife Walk

Families had a fab time on our London Wildlife walk - with huge thanks to London Wildlife Trust for welcoming us to Walthamstow Wetlands.
How to ensure good oral hygiene when neutropenic

People with aplastic anaemia need to take extra care of their oral hygiene, especially if you are neutropenic or taking ciclosporin.
How to manage a nose bleed

What you should do if you experience a nose bleed at home that does not stop. With advice for you and for medical professionals.
Sepsis Awareness

Find out what sepsis is, how to spot the signs and navigate A&E.
Get support from Maggie's

We work in partnership with Maggie's charity, so they can widen their welcome and offer their services to people affected by aplastic anaemia. Read here about what support is available to you and how you can access it.

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more