Rare Voices podcast episode 5: Navigating the healthcare system When conditions are rare, even healthcare professionals fail to recognise them. This episode discusses some of the struggles that people living with rare blood disorders can experience when trying to get medical care. How do we improve awareness of these conditions among healthcare professionals? How do we get doctors to listen to us? What specialist services are available? What do you do if you suspect you have a rare blood disorder but doctors aren’t seeing it? Guests: Julia, parent of a child with Fanconi Anaemia Virginia, living with PNH Cameron, living with Shwachman Diamond Syndrome Listen now: You can also search for "Rare Voices Podcast" to listen on your favourite podcast app. Want to hear from people living with ultra rare bone marrow conditions? Listen to our podcast! Listen to more podcast episodes Find more AA voices AA voices AA voices is the area of our website where people affected by aplastic anaemia or related conditions share the stories they feel are important, in their own words. If you would like to tell your story here, please get in touch with Ellie, our Head of Comms, by emailing [email protected]. Manage Cookie Preferences