Supporting someone who has aplastic anaemia Parents How The Aplastic Anaemia Trust can support your family Supporting Families The Aplastic Anaemia Trust is here to support families of children living with aplastic anaemia. This includes parents, grandparents, aunts, uncles, siblings and anyone else within the family unit who has been affected by aplastic anaemia. The help we can offer includes but is not limited to the following: one to one support sessions online group sessions expert-led webinars in person coffee mornings (location dependent) signposting to other relevant agencies personalised benefits advice through our partnership with Maggie's bespoke emotional health support from our in-house psychology team information through the Aplastic Anaemia Trust leaflets membership of the Youth Board for young people between the ages of 17 and 25. access to our Emotional Wellbeing courses and much more Bespoke Support The support we give is tailored around the needs and wishes of individual families. We understand that a diagnosis of aplastic anaemia or a related rare bone marrow condition impacts the whole family, not just the person who is ill. That's why we provide holistic support for the whole family. We do this by: Assessing each family on an individual basis Providing them with the tools and information they need to make informed decisions to best support their child Ensuring other members of the family also have access to support Youth Board A great option for young people aged 17-25, the Youth Board share their experiences to ensure that we offer young people and children the very best possible support. Ongoing meetings with the Youth Board take place and the members share their experiences of their own lengthy hospital stays and feedback to us the resources they believed would have the most beneficial and positive impact on a child’s hospital stay. One outcome from these meetings was the development of a 'Bravery Box' for children to receive whilst in hospital. The Bravery Boxes consist of a personalised drinking bottle, a homemade knitted blanket, a tablet (to access the Marrowkidz resources), fluffy socks, sensory toys, a brand new MarrowKidz Hospital Activity book also designed by the Youth Board, sweets, reading and writing books and a variety of small toys. Open to people aged 17 - 25 years, the Youth Board are always looking for new members, everyone is welcome and if you would like to know more please see our Youth Board page. Here for all families We are actively working with a large number of families. All families receive different levels of support depending on their needs. We can support families where any family member has been diagnosed with AA or a related condition, whether that's a child or one of the parents or grandparents. The project is led by Zoe Smith from the Support and Outreach team. All families receive regular check-ins and are given access to one of the Support and Outreach team members, Sam, Kim or Linzi. Register now and find out how we can help! Let us support you! We know that sometimes it’s difficult to reach out for support when you are going through a traumatic time but if you would like to chat to someone about your or your family members' diagnosis and what The AAT can offer you, then please register now, include your contact details, and we'll be in touch. Register here Referring a patient? If you are a health professional referring a patient in for family support, please click on the button below. Refer your patient here Manage Cookie Preferences