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  • Life with aplastic anaemia
  1. Home
  2. Life with aplastic anaemia

Life with aplastic anaemia

Having aplastic anaemia, or caring for someone who does, can affect many different aspects of your life. On this page, you'll find practical, expert advice on everything from protecting your mental wellbeing to applying for financial support. 

Many of the topics below are covered by our expert webinars, or discussed in detail at our online chat groups. See what's coming up soon on our events page. If you have a question that's not answered in these pages, please get in touch - we'd love to help. 

Our resources

Sex and relationships

Sex and relationships

Living with a rare bone marrow failure condition can have a real impact on your intimate relationships. We asked Caroline Lovett, a psychosexual and relationship therapist, to work with us to create this series of articles and videos, covering some of the issues and feelings you might be experiencing. Read more

Published: 5th May, 2026

Updated: 7th May, 2026

Author: Ellie Dawes

Coping with isolation

Coping with isolation

When you are being treated for aplastic anaemia, you may need to spend some time in isolation. This means that for a while you need to be protected from germs and will need to see and spend less time with people than usual. Many people have told us that spending time in isolation can feel like one of the biggest challenges when dealing with aplastic anaemia. However, there are things you can do to make it feel better. Read more

Published: 4th December, 2025

Author: Ellie Dawes

Conditions connected with aplastic anaemia

Conditions connected with aplastic anaemia

Conditions that may cause aplastic anaemia, or which aplastic anaemia patients are more likely to develop. Read more

Published: 18th February, 2025

Author: Ellie Dawes

Rare Patient Passport

Rare Patient Passport

To apply for your own Rare Patient Passport Read more

Published: 30th December, 2024

Updated: 27th May, 2025

Author: Hannah Mitchell

How to ensure good oral hygiene when neutropenic

How to ensure good oral hygiene when neutropenic

People with aplastic anaemia need to take extra care of their oral hygiene, especially if you are neutropenic or taking ciclosporin. Read more

Published: 2nd September, 2024

Updated: 19th March, 2026

Author: Ellie Dawes

How to manage a nose bleed

How to manage a nose bleed

What you should do if you experience a nose bleed at home that does not stop. With advice for you and for medical professionals. Read more

Published: 2nd September, 2024

Updated: 19th March, 2026

Author: Ellie Dawes

Sepsis Awareness

Sepsis Awareness

Find out what sepsis is, how to spot the signs and navigate A&E. Read more

Published: 2nd September, 2024

Updated: 19th March, 2026

Author: Rosalie Minnitt

Get support from Maggie's

Get support from Maggie's

We work in partnership with Maggie's charity, so they can widen their welcome and offer their services to people affected by aplastic anaemia. Read here about what support is available to you and how you can access it. Read more

Published: 8th January, 2024

Updated: 19th March, 2026

Author: Sam Williams

Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Benefits

Benefits

A useful guide to the benefits that may be available to aplastic anaemia and rare bone marrow failure patients and their families/carers Read more

Published: 19th December, 2023

Updated: 19th March, 2026

Author: Anonymised User

Tips for when you have a poor appetite

Tips for when you have a poor appetite

If you are not eating as well as you would normally, these tips may help you to eat more and maintain a healthy weight Read more

Published: 19th December, 2023

Updated: 1st June, 2026

Author: Anonymised User

Clean Diet

Clean Diet

How to avoid getting infections from food when you are neutropenic Read more

Published: 19th December, 2023

Updated: 19th March, 2026

Author: Anonymised User

Sunshine Magazine

Sunshine Magazine

The internet is great for connecting people - but sometimes you just can't beat cheerful post. We also provide our Sunshine magazine which we post out 3 or 4 times a year - request your copy here. Read more

Published: 27th July, 2023

Updated: 19th March, 2026

Author: Ellie Dawes

How to Deal With Fatigue

How to Deal With Fatigue

Find out what fatigue is and how you can manage it with the help of Occupational Therapist, Clare Traub. Read more

Published: 20th July, 2023

Updated: 19th March, 2026

Author: Rosalie Minnitt

Low cost recipes for a neutropenic diet

Low cost recipes for a neutropenic diet

Recipes that fit the neutropenic diet guidelines, cost less than £1 per portion, take less than 30 minutes to prepare and, of course, be very tasty indeed! Read more

Published: 3rd March, 2023

Updated: 19th March, 2026

Author: Hannah Mitchell

The Aplastic Anaemia Trust Patient Support Facebook Group

The Aplastic Anaemia Trust Patient Support Facebook Group

Our online Facebook support group is a fantastic source of peer support for people whose lives are affected by aplastic anaemia. We run a bustling main group, plus sub groups for people on Watch & Wait and for people who are bereaved. Read more

Published: 8th July, 2022

Updated: 19th March, 2026

Author: Ellie Dawes

Join The AAT Youth Board

Join The AAT Youth Board

The Aplastic Anaemia Trust is looking for young people with experience of aplastic anaemia and rare bone marrow failure conditions to join our youth board. Read more

Published: 1st May, 2022

Updated: 19th March, 2026

Author: Ellie Dawes

What should I do if I have Covid?

What should I do if I have Covid?

If you are suffering from Covid, don't panic. We've shared some top tips to for you to access the care and support that you need to help with your recovery. Read more

Published: 31st January, 2022

Updated: 16th September, 2024

Author: Sam Williams

Discrimination at work - advice for aplastic anaemia patients and carers

Discrimination at work - advice for aplastic anaemia patients and carers

Employment Lawyer Carolyn Miller gives a summary of your rights at work under the discrimination act, how to tell if you're facing discrimination and what to do about it. Read more

Published: 18th December, 2020

Updated: 19th March, 2026

Author: Ellie Dawes

Covid Vaccination Updates

Covid Vaccination Updates

All of the latest updates about Covid vaccines and their impact on the AA community. Read more

Published: 30th November, 2020

Updated: 9th April, 2026

Author: Sam Williams

Comments: 4

Having aplastic anaemia as a young adult

Having aplastic anaemia as a young adult

Advice and tips from young adults on coping with aplastic anaemia. Read more

Published: 1st July, 2020

Updated: 23rd March, 2026

Author: Leena O'Hara

Having aplastic anaemia as a teenager

Having aplastic anaemia as a teenager

Advice and tips from young people on coping with aplastic anaemia. Read more

Published: 1st June, 2020

Updated: 18th March, 2026

Author: Leena O'Hara

Cold season advice

Cold season advice

Information for individuals with aplastic anaemia and their families to help prepare for the cold season Read more

Published: 15th October, 2018

Updated: 3rd June, 2025

Author: Grazina Berry

Holidays and Travel

Holidays and Travel

How to plan a holiday when diagnosed with aplastic anaemia Read more

Published: 25th July, 2018

Updated: 19th March, 2026

Author: Anonymised User

Load more Back to top

Latest

  • Treatment to reduce your risk of infections

    Treatment to reduce your risk of infections

    Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)

  • Raising for the rare

    Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.

  • Young People's Support Group Taster Session

    Young People's Support Group Taster Session

    Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.

  • London Landmarks Half Marathon 2027

    London Landmarks Half Marathon 2027

    Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Most read

  • Covid Vaccination Updates

    Covid Vaccination Updates

    All of the latest updates about Covid vaccines and their impact on the AA community.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Treatment with ciclosporin

    Treatment with ciclosporin

    Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients

  • Diagnosis and treatment: a short summary

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Get support

    Get support

    If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call.

  • Holidays and Travel

    Holidays and Travel

    How to plan a holiday when diagnosed with aplastic anaemia

  • Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here.

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

Tag cloud

ATG Buffy Buffy Younger Impact Fund children diagnosis Elin's blog fundraising mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video videos young people
Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more

Published: 7th April, 2026

Updated: 16th April, 2026

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